Acceptance
Mar. 31st, 2024 10:29 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
nibblezzAfter having a tonic-clonic seizure, my first in almost 30 years last month I finally accepted the fact I will always have epilepsy, due to a much lower seizure threshold compared to those who are neuro-typical. Even if I avoid KNOWN triggers, there will always be a chance I encounter an unknown trigger and have a seizure.
To make a long story short, I'm back on oxcarbazepine. I can't drive for three months and I'm back to watching what I eat and avoiding VOCs and other harmful chemicals/situations/foods that trigger my seizures.
The subreddit r/Epilepsy was instrumental helping me to accept that I need to be on meds for the rest of my life. The awful stories of uncontrolled seizures and the associated severe injuries really put things in perspective. I've been lucky that the most severe injury I've endured during a seizure was a punctured cheek and a really bad tongue bite.
While I've accepted this, having to come to terms that I got to eat a shit sandwich for the rest of my life sucks.
To make a long story short, I'm back on oxcarbazepine. I can't drive for three months and I'm back to watching what I eat and avoiding VOCs and other harmful chemicals/situations/foods that trigger my seizures.
The subreddit r/Epilepsy was instrumental helping me to accept that I need to be on meds for the rest of my life. The awful stories of uncontrolled seizures and the associated severe injuries really put things in perspective. I've been lucky that the most severe injury I've endured during a seizure was a punctured cheek and a really bad tongue bite.
While I've accepted this, having to come to terms that I got to eat a shit sandwich for the rest of my life sucks.
no subject
Date: 2024-04-02 02:38 pm (UTC)I'm glad you found support in a Reddit community. It sucks, but I want you to be safe too!
no subject
Date: 2024-04-05 12:50 am (UTC)